Knee Replacement Surgery and the Decision to Have it Done

My situation took a turn for the worst when I realized  I needed a knee replacement. 😕 The devastation of needing this procedure done at my age is overwhelmingly devastating to me. I'm becoming unable to walk or stand for extended periods of time without having excruciating pain. When I sit down I fear the moment I have to get up because of the severe pain. Being employed and having to work naked it that much harder to make the decision tho have the surgery. Decisions are so difficult to make.  😞

Summer 📖📚

Frustration and Pain

The frustration of waiting in a doctor's office can be overwhelming,  especially when pain is involved. I find this to be an ongoing problem for me. My blood pressure is always elevated, and level of anxiety is at an all time high. As I sit in the next room listening to them laugh and chat with other patients, I still 1 hour and 3 minutes waiting 😔. I often have thought of knocking on her door and  asking "am I next". It's freezing in this office even with my jacket on I'm still cold and sweating! It is very important to choose your care providers wisely because no one should have to be sitting in a waiting room waiting to be seen when your appointment has passed over an hour ago. #findinganewdoctor

Summer 📚📚

We Need A Cure Soon

Today I  was lying down reflecting on my pain, even though I was not in excruciating pain at the time I was thinking about pain. I feel like a human pincushion or perhaps an experimental guinea pig. Constantly getting blood drawn to see if all the meds I'm taking are not causing problems with my liver or other organs. Wondering if the labs will be normal, afraid of what they may find. My mind is an emotional roller coaster scattered with Brain Fog and an occasional brain hiccup.

Dealing with chronic pain is very hard and painful. Everywhere you go people say "you don't look sick, if I had a dollar for every person that said this I'd be a millionaire". If I wore my pain outside of my body people wouldn't look at me at all I would be a hideous, and grotesque sight.

Finding a cure is so important that research must continue and never cease. I'm praying they will find a cure soon, or formulate a safe medication that will offer a more functional way of life. 

Pain, Stiffness, and Invisible Illnesses

Having chronic pain couldn't be more horrible than the "nighttime" pain and "morning stiffness". These two together can make your night longer and your mornings slower! More often than not, my night pain prevents me from getting a good nights rest. I'm so tired of pain if only there was a cure to help me and all the "Spoonies" and all of the "Pain Warriors" Worldwide it would be amazing. When I'm having a flare being supportive, not judgmental is what I need. Many individuals have no knowledge of what an invisible illness is, let alone what the person afflicted endures. People have such a one track mind that if they cannot see a physical disability, they think nothing is wrong with me. That is one of the most common responses that I hear about my Fibromyalgia. Today I challenge everyone to encourage someone you know to learn more about Fibromyalgia, and other invisible illnesses. Educating yourself plays a big role in understanding and helping individuals with Fibromyalgia. Thanks for listening!

Summer

Welcome to my Blog

Welcome to my Living with Fibromyalgia blog. I'm Summer and I've had Fibro for quite some time now. I also have Sarcoidosis, and recently diagnosed with Osteoarthritis. I'm a wife, Mother of 3, and Mimi of Skylar (our newest edition to debut in February, 2017). 😄 Living with Fibromyalgia is definitely not the way I expected to live my life. Chronic pain, chronic fatigue, depression, and anxiety, plague my everyday life. Everyday is different for me, but the pain is constant. Understanding these diseases have no cure, I stay focused and empowered to find various way to enjoy my life. Stay tuned for my daily blogs 

Summer 📚

Chronic Pain

Living with chronic pain is something I never imagined would happen to me in this in this lifetime. Chronic pain is unforgiving and doesn't care about your age, gender, or financial class. When addressing my pain to my numerous providers or friends I begin by saying "pain hurts". Many would say of course pain hurts, my response is " this pain is indescribable. Pain so intense I felt as if I was going to die. I've been living with Fibromyalgia for 20 years now, and the symptoms are progressing causing more debilitating pain. Knowing there is not cure for Fibro I must continue to be a "warrior" against my own body.  #Gentlehugs #Spoonie